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ACS Cancer Programs Integration Meetings - Shared screen with speaker view
Bryan Palis
10:04
If everyone will please stay on mute unless talking, it will be much appreciated.
Hop Tran Cao
12:41
I have a hard time hearing you
Hop Tran Cao
13:25
Perfect
Allissa Anderson
13:31
Sounds great!
Jeff Gershenwald
48:52
Ryan - roughly how many data items are disease site specific vs disease-site agnostic for a unique analytic case?
Stephanie Hill
53:37
How does NCDB handle or assess cases that are submitted by more than one facility for the same patient and/or tumor?
Bryan Palis
55:46
NCDB uses a deduplication algorithm to identify "same patient" across reporting hopitals. THis is a probabalistic match based on demographics due to non-capture of direct identifiers.
Heather Gaburo
56:00
Is cold ischemic time collected by NCDB beyond breast cancer, and if not, is it under consideration for collection? Cold ischemic time is an important pre-analytical factor in assessing tissue quality for molecular testing and research studies across all cancers.
Alex Olawaiye
56:14
I believe that this problem is prevented by the fact that they collect data about the 1st time the cancer is being treated- - - -it is unlikely that a patient will undergo his or her initial therapy at more than on
Donna Gress, RHIT, CTR
56:19
The Site-Specific Data Items (SSDIs) for each disease site vary from 1 to about 25 at the most. For example, breast has 25, where other sites only have 1 or 2.
Jeff Gershenwald
56:36
thanks Donna
Toncred Styblo
57:09
How are INCP NCDB data integrated with their daughters?
Donna Gress, RHIT, CTR
58:15
Cold ischemic time is not collected for registrars for any site.
Donna Gress, RHIT, CTR
58:38
Cold ischemic time is not collected by registrars for any site.
Heather Gaburo
58:50
thanks Donna
Stephanie Hill
01:25:58
Ryan mentioned earlier that cancer registries have been doing interoperability since before it was a thing. What opportunities exist for using interoperability and automation (i.e., linkages) to supplement manual abstraction?
Sandra Kurtin
01:27:08
This is such an important topic - what and why are collecting data. We can create charts and graphs, but what is the outcome of that data?
Lisa Robinson
01:27:56
Agree Ryan. The key to maintaining Cancer Registry value and decrease burden on the Registrars is to invest in AI and automated function.
Stephanie Hill
01:28:55
Central registries are already doing some of this. I think there is an opportunity to improve or close the feedback loop and provide the results of those linkage back to hospitals for submission to NCDB
Toncred Styblo
01:36:28
Daughter data are not available to network surveyers
Jeff Gershenwald
01:42:23
there may be an exciting opportunity to use special projects to explore in a manageable and thoughtful way some of these challenges in data abstraction from perspective of POS-EHR-registry-NCDB axis
Jeff Gershenwald
01:43:12
*POS - point of service (clinic)
Alex Olawaiye
01:43:15
Agree